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All About Sturge-Weber Awareness

myla's mission

My Vlog
15 DAYS TO THE EVENT
Jan 31, 2026, 4:00 PM
Into the Woods Event Space
Join us for an evening of fun and fundraising! We will be serving a delicious turkey and ham dinner, cash bar, kids' and family activities, local vendors we love, and tasty baked goods for sale. All proceeds go directly to support sweet Myla and her family while they focus on her recovery!
Image by Krystal Ng
My Story

Hi! 👋
I'm Myla Jane...

Hi everyone! I'm Myla Jane Speer, and I'm 8 years old! I am a girly girl and I love to sing, I am totally obsessed with Frozen, all things mermaids, and I love hanging out with my little brother and sister, Everett and Aspyn. I'm also a super busy girl! I'm in gymnastics and dance, I'm a Pirate cheerleader, and I even play basketball and softball.

I'm also a superhero – well, kind of! I have something called Sturge-Weber Syndrome, which sometimes makes things a little tricky. It can affect my learning, my eyes, and sometimes I have seizures. But guess what? I don't let it stop me! I'm a fighter, and I'm learning and growing every day. I might need a little extra help sometimes, but I'm strong and I'm brave. So, that's me! Thanks for cheering me  and others who have Sturge-Weber on! 

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Myla's Mission Moments

My Life
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01

in 50,000 people are born with Sturge-Weber

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10

percent of babies born with a Port Wine Stain develop SWS

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1

incredible

Myla Jane

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