25 DAYS TO THE EVENT
May 15, 8:00 AM
Decatur County Memorial Hospital Primary
Join us for the 4th annual Myla's Mission for Sturge-Weber research and awareness 5K and silent auction!

I HAVE STURGE-WEBER SYNDROME

I AM FOUR

I AM IN PRESCHOOL

I AM A BIG SISTER

I LOVE TO SWIM

Meet Myla Jane

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W

S

Sturge-Weber syndrome (SWS) is a neurological disorder marked by a distinctive port-wine stain on the forehead, scalp, or around the eye. This stain is a birthmark caused by an overabundance of capillaries near the surface of the skin. Blood vessels on the same side of the brain as the stain may also be affected. A large number of people with SWS experience seizures or convulsions. Other complications may include increased pressure in the eye, developmental delays, and weakness on one side of the body.

donate

DONATE DIRECTLY TO THE STURGE-WEBER FOUNDATION IN HONOR OF MYLA! 

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learn more

Visit the Sturge-Weber Foundation Website to learn more about this rare syndrome!

get involved

Interested in becoming a sponsor? 

Email us! 

Sturge-Weber is a journey we never planned, but we sure do love our little tour guide!

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