0 DAYS TO THE EVENT
May 15, 8:00 AM
Decatur County Memorial Hospital Primary
Join us for the 4th annual Myla's Mission for Sturge-Weber research and awareness 5K and silent auction!

I HAVE STURGE-WEBER SYNDROME

I AM FOUR

I AM IN PRESCHOOL

I AM A BIG SISTER

I LOVE TO SWIM

Meet Myla Jane

S

W

S

Sturge-Weber syndrome (SWS) is a neurological disorder marked by a distinctive port-wine stain on the forehead, scalp, or around the eye. This stain is a birthmark caused by an overabundance of capillaries near the surface of the skin. Blood vessels on the same side of the brain as the stain may also be affected. A large number of people with SWS experience seizures or convulsions. Other complications may include increased pressure in the eye, developmental delays, and weakness on one side of the body.

139811546_10158373045472631_839210121477

donate

DONATE DIRECTLY TO THE STURGE-WEBER FOUNDATION IN HONOR OF MYLA! 

12401792_10156374323160557_6202575503593

learn more

Visit the Sturge-Weber Foundation Website to learn more about this rare syndrome!

Get Involved Photo.jpg

get involved

Interested in becoming a sponsor? 

Email us! 

Sturge-Weber is a journey we never planned, but we sure do love our little tour guide!