0 DAYS TO THE EVENT
MYLA'S 2020 MISSION FOR STURGE-WEBER AWARENESS 5K
Jul 25, 2020, 9:00 AM
Virtual Walk

I HAVE STURGE-WEBER SYNDROME

Meet Myla Jane

I AM THREE

I AM IN PRESCHOOL

I LOVE DIP

I AM A BIG SISTER

I LOVE TO SWIM

I TAKE GYMNASTICS

S

W

S

Sturge-Weber syndrome (SWS) is a neurological disorder marked by a distinctive port-wine stain on the forehead, scalp, or around the eye. This stain is a birthmark caused by an overabundance of capillaries near the surface of the skin. Blood vessels on the same side of the brain as the stain may also be affected. A large number of people with SWS experience seizures or convulsions. Other complications may include increased pressure in the eye, developmental delays, and weakness on one side of the body.

donate

DONATE DIRECTLY TO THE STURGE-WEBER FOUNDATION IN HONOR OF MYLA! 

12401792_10156374323160557_6202575503593

learn more

Visit the Sturge-Weber Foundation Website to learn more about this rare syndrome!

get involved

Interested in becoming a sponsor? 

Email us! 

Sturge-Weber is a journey we never planned, but we sure do love our little tour guide!

  • 150.SWF.Official-new-logo_edited
  • Black Facebook Icon
  • Black YouTube Icon
  • Black Pinterest Icon
  • Black Instagram Icon